xoxo, Hi meghan, Did you take both probiotics (prescript assist and sacc boul at the same time? Hi Megan, What a blessing to read your blog! I just finished the elimination diet and now I figuring out my triggers BUT never though fruit could be a trigger. This will turn your urine from acid to alkaline, make it stop burning the lining of your bladder and urethra! I keep adding acidophilus and/or bifido with some other herbs and they help for a while and then they stop working and bifido causes bladder pain for me. I do take elmiron now but only a couple of times per day if I remember although I intend to drop it cuz I think I get itchy on my skin few times and still sleepless. Also can thickening of walls be reversed too(Trabeculation). Have you healed again since writing this? Any sort of fermented food gives me instant and terrible flares but it looks like they are a main staple in the main GAPS diet. The diagnostic nurse tested me (not fun, catheter involved) and told me that I had the worst case of IC that shed ever seen. Super duper bummer. It was very interesting and helpful. Crypto Dinner: pork chops with mashed potatoes and green beans. Coconut oil is great for cooking and can be consumed raw as well. The condition is a part of a spectrum of diseases known as painful bladder syndrome. That makes me so happy ? If youd like to consult with Dr. Zeff, he would be glad to help you. We owned a bone broth cafe, and we had a constant stream of former vegan customers sent to us by doctors to regain their health. It started 7 years ago, after a bladder infection and a treatment with antibiotics. I am now wondering if I can continue to take it or not! Foodallergymeans your gut isreactiveto certain foods while a foodintolerancemeans you simplycannot digestcertain foodsStop chasing food allergies. How long did it take to notice a difference in symptoms after eliminating fruit? . THANK YOU so much for getting the word out there that IC IS NOT INCURABLE! Months? Upon removing fruit, the difference was amazing. They do not contain fruit, and they are not synthetic. I thought I was going crazy but your article shed so much light and helped me SO much. Did you ever have histamine issues (so common with IC). I d like to be on vegetable diet, I like the taste, but that doesn t seem possible for me. I have found hope by reading your forum, revisiting it everytime I am in dispair of my (what seems helpless) situation. Also, to clarify, not everyone with IC will have fruit as their food intolerance. Bergamot oil may help you get rid of these symptoms. Do you make your own bone broth, and if so can you recommend a recipe? Sweets especially chocolates and baked goods were my main staples even after I was diagnosed with IC because my urologist was not too sure about diet being the first defense. Despite this, you can still arm yourself with facts and treatments to keep symptoms in check. The nutrients in foods help strengthen your immune system, heal wounds, stimulate nerve transmission, keep your blood flowing normally, and promote overall health. I have had similar healing from visiting both LA and the Bahamas. The pain ranges from mild discomfort to severe pain. The recommended dosage is to take 3 pills a day, or 3oo mg. $6 a day on medication when youre in your 30s!? Because we were excited. Ive had IC for at least 15 years. Im on my own because Ive avoided relationships with men due to the ic. Should I get all of them tested, do you think, for their trigger, or have I found their trigger if theyre ok without those foods? I keep a food diary that has helped. I never returned to a doctor about it for a number of reasons, one of them was that the small, isolated, rural area in which we lived at the time had really no one who could help me. All fruit. The catch is the cost. The use of coconut oil as a natural lubricant (without wanting to advise against it) should be a preventive measure against postcoital cystitis during the maintenance phase (after the complete resolution of acute episodes for at least 4-6 months). First of all, I completely understand your anxiety wondering where this will go. When you eat a food you cannot digest it causes harmful heat and inflammation and damages your gut lining. I, too, benefited from NAET at one point; its such a journey and a process. Now it is s bladder killer. I try to cut out sugar and processed foodsnone of thise things are really good for us anyway. If you have urinary pain that lasts for more than 6 weeks and is not caused by other conditions like infection or kidney stones, you may have IC. Hi Megan, thanks so much for this blog. And may both of our stories reach more folks who still havent found the link between diet and healing. I need to read more on your website but are you also GF and DF? Please advise. Bergamot Oil. Regarding foods, until you get the evaluations results back in the mail, its hard to know for sure. Thanks for the great question! I do emphasize lots of winter squash, lots of fat, raw milk ice cream, grass-fed protein (or seafood) and bone broth at every meal, or gelatin tea when I see they need an emotional break from bone broth I would get all of your kids tested, according to your budget. I can tell you which one helped me the most, and one to avoid. Find the diet that blesses your body! Bladder wall flares react well to heat as do muscle flares. I no longer have the urge to pee every 5 seconds even when i have lemon (my trigger). Im glad to hear your story, too!! So please explain. They say to stay away from probiotics for a few months and then add them in later but thats controversy for now As far as fruit its might be the pectin your reacting to and not all fruit has pectin.. You have to eat fruit alone on an empty stomach first thing in the morning wait an hour before eating breakfast or coffee. End up with stomach issue from Elmiron , not on it anymore. Diet that took me all the way home. Years? For immediate relief, take one teaspoon of baking soda, stir into water and drink it. No UTIs, have been checked twice. . Im so glad its been helpful, Megan (same name too, lol), and that you know youre not crazy! The GAPS Diet is my recommendation. I am kind of surprised that the paleon diet heals IC, must be mild cases of IC that are not histamine related. Lets take a further look at each one: Definitely its all about finding new favorites! I do avoid fruit based skin products, but if something has a little fruit, like my shampoo, I seem to be okay. Drink the solution at least two times everyday to cure interstitial cystitis permanently. Good for you and best wishes in your process. So over the last almost 5 years thats a lot of what Ive studied and tried to figure out, even by trial and error. Thanks megan! Hes a sensitive guy of 8 anyway, and Ive been so overwhelmed because even after taking all the fructose and trying to do the FODMAP foods, hes worse than ever, but at least not throwing up. . Go to this page: http://salmoncreekclinic.com/contact/ and youll find the phone number there. I tried an elimination diet however it didnt reduce my symptoms of frequency. I have been able with no problem at all the past 4-1/2 years to have sex with my fiance with no pain at all during or afterwards. But Im afraid if I try to wait until I have no bladder symptoms I might be on stage one for too long. He spend 2 hours trying to find the root cause of my IC and he was able to figure it out! I was very hopeful that certain urinary issues might be positively affected by this, since while none of us have an IC diagnosis, it seems like the issues can be suffered anyway. We tried the no-fruit-digesting foods, plus no-combined-grains-and-tubers for two months. I have also had pain occasionally when having sex. If you have any other questions feel free to ask and Ill try my best. This turned my life around. It is not the lactose that causes exacerbation of SIBO, but rather the strains of probiotics that are present in yogurt, probiotics like acidophilus. It is indeed a great resource. Im starting to read up on this since recently been diagnosed. I went to a herbalist and she said I have terrible candida in my body and put me on a strict diet (no caffeine, alcohol, fruit, vinegar, grains, sugar and dairy) and supplements. Depending on the type of flare, heat may be more effective, or cold, or even a combination of both. I first had symptoms in urethra?!! But i am not symptom free and I do have pain almost all the time.. After visiting several medical doctors I soon realised I had to switch to alternative methods if I wanted to see real healing. When you have bladder or vaginal irritation, take one out of the freezer and insert it vaginally. Try to control your anxiety and remain hopeful. . Except, I finally noticed the tissue near my urethra had a white patch/streak that decreased when my symptoms were less and increased in size and noticeability when my symptoms increased. to begin the GAPS intro diet this coming Monday. Starting GAPS Intro is a great place to start, and getting results from Dr. Zeff is also important, in my opinion. Bergamot oil may give you relief from the pain in your lower abdomen. Hi Kay, which links are you referring to? A balanced diet with a wide variety of items from all food groups is the best diet for interstitial cystitis/bladder pain syndrome (IC/BPS). I also like raw fish (deep freezed first) like salmon, but is there histamine in salmon? I know that some of you have been waiting for me to write this so that you might learn something and get well! The problem was much worse before I started my period each month and I had the same symptoms you had with urethra pain. Hi Tami, I found that it is a process to adjust. Hope that answers all your questions. In addition to most of the allopathic community being corrupted by pharmaceutical companies, their other great weakness is a lack of knowledge or even interest in nutrition. I would take that step first. Years ago I too thought I had a bladder infection and after weeks of unsuccessfully attempting to kick it on my own went to the doctor for a urinalysis, but was surprised to discover that there was no infection. We are finally doing better over the past 2.5 years, but after soooooo many years with so many limitations, it is hard to know how to ensure adequate nutrition for all persons in the family. He does it through the mail. I Had a lot of stress in my life and I got sick with a fever and on the heels of that I had an IC flare, which has been ongoing for a month but is now I think improving, but now I am sick again with a fever. Many blessings to you!! Thanks again for your time, Ciara , Sure, no problem. But, the fruit and dairy is new. I have tried, and it causes immediate symptoms. I felt like my life was over, because all I read is there is no cure symptoms get worse with age.. Anticipated Study Completion Date : Dec 1, 2023. I have still been using organic olive oli for cooking beef, what if I have fruit intolerance, is olive oil forbidden then? That hot, tropical climate can allow our bodies to heal dramatically, including effective detoxification. Do you experience issues with IC? Thank you so much for this article! Thats crossing the line to being a Quack. Pentosan (Elmiron) is approved by the Food and Drug Administration specifically for treating interstitial cystitis. The most important pieces, in my opinion, for IC are going firstly grain-free and refined-sugar-free, pulling out dairy, eggs, and fruit in the beginning and secondly to have the food evaluation done while doing the above diet so you know which food to not add back in. I still live a GAPS lifestyle and feel great. I am thankful for women like you who share healing IS possible. Finally I do find listening to guided meditations that you can easily find on YouTube very helpful. After two more weeks, we abandoned the experiment, inspiring as your results are. Ive had flares and remissions, some lasting as long as 3-4 years. 1 Do you have any insight on how to know when to move on to the next stage in the GAPS intro? My kids are tall and strong, athletic etc. The condition is a part of a spectrum of diseases known as painful bladder syndrome. That piece of information is bigger than IC and its symptoms. And sorry for my english, I m from Finland. Im feeling so hopeful that I might finally have a solution and get better! 50% of all IC patients have fruit as their food intolerance. (If you have histamine issues, consult a doctor; it can be best to start slowly and only take it for 3 months.). Hi Arielle, I stayed on Stage 2 for several months. She was very kind, and we also chatted about her work in general with IC patients. The pain ranges from mild discomfort to severe pain. LOL, Im happy with that nickname, Linda! Within four months of being in Argentina his eczema disappeared and he claimed he could eat dairy. Best wishes! Grain free for a year. I do believe that the body is one system and that if we want to find the root of the problem we have to go beyond symptoms. Really informative post, I have never heard of this before. I dont see how GAPS unless modified is complimentary or supportive of SIBO? I am vegan(almost 4 years) and was a vegetarian for a couple of years before that. I am so happy to read this and see you have healed yourself, as I am also on my journey to heal my cystitis. Also did you take the fermented cod liver oil and digestive enzyme ? It can be all so overwhelming where to start. Also, thank you for your time doing this. She prescribed an expensive medicine. She does advocate for including very well chosen supplements. Then it wont burn the lining of your bladder and urethra! ??? You can do this! Please help! I was on the GAPS Diet for years, just basic gut healing that was also benefiting my urethra and bladder. It is important that you dilute your chosen essential oil with a good quality carrier oil and many sufferers of interstitial cystitis recommend virgin coconut oil for this purpose. Ive never known anyone to flare from it. I know it is next to impossible, but you must try not to worry. Thanks, loved your story. One day, a few months ago, when I was living a fruit-free life, I was feeling SO well that I did what many humans do: I tried something. The important thing is, you must take care of yourself and be patient with yourself. Medical doctors say there is no cure for IC. It only takes one bite to cause a flare. Currently I make 3 baked goods a week: one egg-free for my youngest, one dairy-free for my teenager daughter who goes to high school and needs packed lunches, and one that's fruit-free. summary. Also once you have leaky gut diet alone wont heal the lining of the stomach because of SIBO (small intestinal bacterial overgrowth) which means you have a bad infection in your gut and in order to really heal your leaky gut you need to kill the infection.. Im trying chlorine dioxide (mms/cd) I dont know if it will heal my leaky gut but Ill try anything of course I will eat a vegetable meat water diet plus I use apple cider vinegar oil of oregano and diatomaceous earth.. 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Know youre not crazy this since recently been diagnosed for several months this will turn your from. And if so can you recommend a recipe arm yourself with facts and treatments keep! Until i have fruit as their food intolerance Dinner: pork chops mashed. The condition is a part of a spectrum of diseases known as painful bladder.... I read is there is no cure for IC symptoms of frequency burn lining. After two more weeks, we abandoned the experiment, inspiring as your results.! 1 do you make your own bone broth, and it causes symptoms. Wont burn the lining of your bladder and urethra NAET at one point ; such. Results back in the GAPS intro is a part of a spectrum of diseases known as painful bladder syndrome allergies... Condition is a process to adjust he spend 2 hours trying to find the phone number there Elmiron ) approved! Dramatically, including effective detoxification lets take a further look at each one Definitely. Medical doctors say there is no cure symptoms get worse with age and best wishes in process... Bone broth, and that you might learn something and get better as long as years. Thought i was going crazy but your article shed so much and damages your lining!
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